I decided to chronicle my experience of going from misdiagnosis to living with Ehlers-Danlos Type III, and how it has affected most of my body. I am fortunate that getting a diagnosed led to my 15 year old son being diagnosed early, before he sustained any organic damage.

My hope is that my blog will allow others realize that they are not alone, and it's not "all in their head", it's very real and debilitating! I also hope that my Counseling background will inspire others not to neglect their mental health as EDS can push our limits; seek support!

Wednesday, August 1, 2012

Follow up on my wrist...

I wrote previously about my first dislocation. Well, it kept getting more bothersome. Today I wasn't even able to lift cups or use my hand to push thing, like the coffeemaker; mind you, I have a pretty simple run-of-the-mill coffee maker, none of the stainless steel K-cups stuff. So I decided to go to the Urgent Care and have them take a look and do some X-rays. Better safe than sorry. If it was just a sprain then I had lost nothing and my mind would be at ease. But with EDS, nothing could end up being a huge something and require fixing that could end up leading to surgery.

I'm glad I went to the Urgent Care! My wrist is fractured. Not only that, the POP I heard....was the sound of the ligament being torn from my wrist!!! The nurse and doctor kept asking and telling me that I must be in terrible pain. Weird thing is, I'm not! I have some discomfort, but it's more of an inconvenience that anything else. The doctor asked me what pain meds I could take..."None", I said. Then she asked about ibuprofen..."I can't take it or Naproxen", I said. "Then what can you take for the pain?!", she asked..."Just Tylenol" I said...."Does it help?"she asked..."It's going to have to" I said. LOL. She gave me a referral for an orthopedic specialist and said it was important they see me because of the torn ligament..."it might be serious". I explained to the doctor about the frequent bursitis in my shoulder and my thought that maybe I was dislocating through the night and didn't know it. Her thought was that because I'm a pretty advanced case of EDS and have so much degeneration, I was probably a chronic dislocator and didn't know it. She said, "I'm more surprised that you say you HAVEN'T dislocated or broken anything before. This is a pretty serious injury. And, I don't doubt that you are dislocating through the night." WOW, chronic dislocator? Serious injury? please no more surgery...

All I can say is, I'm sooo glad I had hypnosis! I've heard about how painful fractures, breaks, and torn muscles and ligaments can be, even making football players cry. I DID NOT FEEL A THING! And, I'm so glad because that's one more pain that I can do without. Even the bursitis isn't as painful. I still have to take the Robaxin and Flexeril, but the level of pain is somehow more manageable. I'm still going to ask about the shoulder sling though. I think it will make a difference and bring the pain down even more by preventing it.

For now, I was told to keep wearing the wrist splints that I usually wear when my wrists are hurting from the EDS. I just have to wear them all the time as if they where a cast, and they're just as good. The benefit is they don't get hot, sweaty or itchy. I have to admit, I do take them off for a shower but I just don't use that hand. After all, they're removable so why should I cover them with a plastic bag? Let's just make things easier, right? Vacation is also coming so I'll probably take an ace bandage that I can tie really tight so the splint doesn't get wet and start to rust inside.

I'll see the orthopedic specialist on Friday morning and find out what happens from here. They got me in fast!

Tomorrow I have the two week follow up for the acid reflux surgery. The surgeon may get an earful from me. Today I was not able to eat until 3 pm! I tried eating some mashed potatoes earlier, but they cam right back out. I tried drinking Gatorade, but I couldn't swallow. Darn his nurse! This is NOT normal! And why the heck is HE NOT AVAILABLE?!

Let's see what the Universe has in store for me tomorrow...

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