I decided to chronicle my experience of going from misdiagnosis to living with Ehlers-Danlos Type III, and how it has affected most of my body. I am fortunate that getting a diagnosed led to my 15 year old son being diagnosed early, before he sustained any organic damage.

My hope is that my blog will allow others realize that they are not alone, and it's not "all in their head", it's very real and debilitating! I also hope that my Counseling background will inspire others not to neglect their mental health as EDS can push our limits; seek support!

Sunday, April 8, 2012

Well it happened

Yep. What I said would with the Cymbalta, happened. And then some! It almost killed me!

It was my 7th day exactly on Cymbalta. All week I had flu-like symptoms as in aches and pains, but no fever or runny nose. Every day I had a headache. But on the 7th day I got a vicious migraine that crippled me and felt like my right lobe was cracking. I started treating with an Imitrex shot. It seemed to work early on allowing me to go through the activities of the day. But by early afternoon I was useless. I couldn't even enjoy Judge Judy! I took the second Imitrex shot and it was the same as nothing, I might as well have avoided trouble and expense of the shot altogether. I took two Tylenol just to feel I was attempting to obtain some relief.

By 8pm I had iced down my head and was working on my second ice pack and decided I needed to move onto something stronger so I took a morphine and a Robaxin. Mark was rubbing my head and covering my eyes to help keep the light out. Finally, I was able to get some relief and fell asleep, with the icepack under my right lobe.

The next day, I still had a migraine although not quite as vicious but still crippling. I moved to Frova just to try something different and longer acting in treating the migraine. It took half the day to take effect, but by early afternoon I was pain free. However, I still had the flu-like symptoms, but other than feeling warm to the touch, I didn't have a fever. I also had difficulty swallowing and it was painful to swallow, it felt as if there was something stuck. I also had a blood spot in my eye. I did sleep most of the day, whether due to the flu-like feeling, or the migraine.

I don't want to think of what would have happened if I had taken the Cymbalta one more night. I just think, thank goodness! I know there will be several doctors or so called specialists saying maybe I did have the flu, or maybe it was something else or maybe, maybe, maybe... Well, I say to them, maybe its the Cymbalta! In fact, I KNOW its the Cymbalta, becuase EVERY time I take a SSRI or SNRI I get sick! And after this I say its progressively getting worse!

Nobody knows more about me than me!
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